Program

2024 Program: 8th Update on Fabry Disease:

Biomarkers, Progression and Treatment Opportunities
June 2-June 4, 2024: Hamburg Germany 
Supporting Organization: Kidneys for Life (Manchester, UK) 
Secretariat: Kongressmanagement bei Aey Congresse GmbH.  Berlin, Germany

Venue: TBA (April 1, 2023)

Program Steering Committee:

Derralyn Hughes, MD, Royal Free Hospital, London UK

Mirjam Langeveld, MD, AMC, Amsterdam NL

Albina Nowak, MD, University of Zurich, Zurich CH

Juan Politei, MD PhD, FESEN, Buenos Aires, AR

Andrew Talbot, MD, Royal Melbourne Hospital, Melbourne AU

Stephen Waldek, MD, Sunderland University UK

Nurcan Üçeyler, MD, University of Würzburg, Würzburg DE

Christoph Wanner, MD, University of Würzburg, Würzburg DE

David G. Warnock, MD, University of Alabama at Birmingham, USA

Michael West, MD, Dalhousie University, Nova Scotia, CA

 Local Hosts to be added

The following entities provided financial sponsorship toward the logistical costs of the 8th International Update on Fabry Disease but have had no input into the agenda, content, or arrangements.

 

 

 

 

The 1st Fabry Nephropathy Satellite "Focus on Fabry Nephropathy: Biomarkers, Progression and Disease Severity", an Official Satellite of the World Congress of Nephrology, was held in Bergamo Italy in May 2009. The second Fabry Nephropathy Satellite "Focus on Fabry Nephropathy: Biomarkers, Progression and Treatment Opportunities" was organized as an Official Satellite of the World Congress of Nephrology, and was held in Vancouver, Canada on April 12--14, 2011. The 3rd Update on Fabry Nephropathy was held in conjunction with the World Congress of Nephrology, in Hong Kong on June 4-5, 2013. The 4th Fabry Nephropathy Update was a Satellite of the ERA_EDTA 2015 Meeting, and was held in Manchester, UK on June 1-2, 2015. The 5th Fabry Nephropathy Update was an official Satellite of the 2017 ISN WCN Meeting, and was held in Mexico City, Mexico on April 25-27, 2017. The 6th Update on Fabry Disease was held in Prague, CZ, May 26-28, 2019. The 7th Update on Fabry Disease  was held May 29-May 31, 2022 in Würzburg Germany

The 3-day conference features, state of the art plenary presentations, case discussions and poster presentations. The intended audience are content experts and "treaters" of Fabry Disease. The focus will be on emerging treatment approaches, baseline characteristics that determine the patient-specific responses to the treatment of Fabry disease, and antibody interactions with infused enzyme replacement therapy.

 

Final Program

Sunday June 2th

8 am On-site Registration

Workshop

 10:00 – 10:20          

10:20 – 10:40           

10:40 –11:10             

11:10 – 11:30             Group Discussion

11:30 – 12:45             Buffet Lunch

12:45 – 13:00 Welcome and Outline of Program: Tobius Huber, MD PhD and Fabian Brun, MD (University of Hamburg-Eppendorf)

13:00 – 13:45             Keynote:

Session 1.                  

13:45 – 14:15            

14:15 – 14:45          

14:45 – 15:15          

15:15 – 15:45           

15:45 – 16:15             Group discussion

16:15 – 17:30             COFFEE BREAK [Networking]

17:30 – 19:00             Poster Session with Opening Reception

Sunday Evening: Free after Reception and Poster Viewing

Monday 3rd June

Session 2.                   

08:00 – 08:30          

08:30 – 09:00           

09:00 – 09:20             Group Discussion

Session 3.        

09:20 – 09:50              

09:50 – 10:10               

10:10 – 10:30          

10:30 – 11:10             Group discussions

11:10 – 11:30             COFFEE BREAK [Networking and Poster Viewing]

11:30 –13:00  

13:00 – 14:15    LUNCH buffet style – working lunch for poster viewing and networking.

Session 4.   

 14:15 – 14:35          

14:35 – 14:55         

14:55 – 15:15       

15:15 – 15:30          Group discussion

15:35 – 16:00             COFFEE BREAK

Sesson 5:

16:00 – 16:20         

 16:20 – 16:40       16:40 – 17:00          Group discussion

Session 6:

17:00 – 17:30       

17:30 – 17:45       

17:45 – 17:55         

17:55 – 18:05        

18:05 – 18:15         

18:15 – 18:25       

18:25 – 18:45         Group discussion

19:00 – 20:30         Reception and Poster Viewing

Monday Evening: Free after Reception and Poster Viewing

Tuesday 4th June

Session 7        

08:00 – 08:30        

08:30 – 09:00       

09:00 – 09:15          Group Discussion

Session 8      

09:00 – 09:25         

09:25 – 9:50        

09:50 – 10:15          Group Discussion

10:15 – 11:00 COFFEE BREAK

Session 9     

11:00 – 11:30           

11:30 – 12:00         

 12:00 – 12:30         

12:30 – 13:00           Group discussion

13:00 – 14:00 LUNCH buffet style – working lunch for poster viewing and networking.

Session 10       Poster Session

14:00 – 15:00         4 x 10 minute presentations to poster prize winners preceded by prize presentations

 15:00 – 15:15            Closing Remarks