2024 Program: 8th Update on Fabry Disease:
Venue: TBA (April 1, 2023)
Program Steering Committee:
Derralyn Hughes, MD, Royal Free Hospital, London UK
Mirjam Langeveld, MD, AMC, Amsterdam NL
Albina Nowak, MD, University of Zurich, Zurich CH
Juan Politei, MD PhD, FESEN, Buenos Aires, AR
Andrew Talbot, MD, Royal Melbourne Hospital, Melbourne AU
Stephen Waldek, MD, Sunderland University UK
Nurcan Üçeyler, MD, University of Würzburg, Würzburg DE
Christoph Wanner, MD, University of Würzburg, Würzburg DE
David G. Warnock, MD, University of Alabama at Birmingham, USA
Michael West, MD, Dalhousie University, Nova Scotia, CA
Local Hosts to be added
The following entities provided financial sponsorship toward the logistical costs of the 8th International Update on Fabry Disease but have had no input into the agenda, content, or arrangements.
The 1st Fabry Nephropathy Satellite "Focus on Fabry Nephropathy: Biomarkers, Progression and Disease Severity", an Official Satellite of the World Congress of Nephrology, was held in Bergamo Italy in May 2009. The second Fabry Nephropathy Satellite "Focus on Fabry Nephropathy: Biomarkers, Progression and Treatment Opportunities" was organized as an Official Satellite of the World Congress of Nephrology, and was held in Vancouver, Canada on April 12--14, 2011. The 3rd Update on Fabry Nephropathy was held in conjunction with the World Congress of Nephrology, in Hong Kong on June 4-5, 2013. The 4th Fabry Nephropathy Update was a Satellite of the ERA_EDTA 2015 Meeting, and was held in Manchester, UK on June 1-2, 2015. The 5th Fabry Nephropathy Update was an official Satellite of the 2017 ISN WCN Meeting, and was held in Mexico City, Mexico on April 25-27, 2017. The 6th Update on Fabry Disease was held in Prague, CZ, May 26-28, 2019. The 7th Update on Fabry Disease was held May 29-May 31, 2022 in Würzburg Germany
The 3-day conference features, state of the art plenary presentations, case discussions and poster presentations. The intended audience are content experts and "treaters" of Fabry Disease. The focus will be on emerging treatment approaches, baseline characteristics that determine the patient-specific responses to the treatment of Fabry disease, and antibody interactions with infused enzyme replacement therapy.
Final Program
Sunday June 2th
8 am On-site Registration
Workshop
10:00 – 10:20
10:20 – 10:40
10:40 –11:10
11:10 – 11:30 Group Discussion
11:30 – 12:45 Buffet Lunch
12:45 – 13:00 Welcome and Outline of Program: Tobius Huber, MD PhD and Fabian Brun, MD (University of Hamburg-Eppendorf)
13:00 – 13:45 Keynote:
Session 1.
13:45 – 14:15
14:15 – 14:45
14:45 – 15:15
15:15 – 15:45
15:45 – 16:15 Group discussion
16:15 – 17:30 COFFEE BREAK [Networking]
17:30 – 19:00 Poster Session with Opening Reception
Sunday Evening: Free after Reception and Poster Viewing
Monday 3rd June
Session 2.
08:00 – 08:30
08:30 – 09:00
09:00 – 09:20 Group Discussion
Session 3.
09:20 – 09:50
09:50 – 10:10
10:10 – 10:30
10:30 – 11:10 Group discussions
11:10 – 11:30 COFFEE BREAK [Networking and Poster Viewing]
11:30 –13:00
13:00 – 14:15 LUNCH buffet style – working lunch for poster viewing and networking.
Session 4.
14:15 – 14:35
14:35 – 14:55
14:55 – 15:15
15:15 – 15:30 Group discussion
15:35 – 16:00 COFFEE BREAK
Sesson 5:
16:00 – 16:20
16:20 – 16:40 16:40 – 17:00 Group discussion
Session 6:
17:00 – 17:30
17:30 – 17:45
17:45 – 17:55
17:55 – 18:05
18:05 – 18:15
18:15 – 18:25
18:25 – 18:45 Group discussion
19:00 – 20:30 Reception and Poster Viewing
Monday Evening: Free after Reception and Poster Viewing
Tuesday 4th June
Session 7
08:00 – 08:30
08:30 – 09:00
09:00 – 09:15 Group Discussion
Session 8
09:00 – 09:25
09:25 – 9:50
09:50 – 10:15 Group Discussion
10:15 – 11:00 COFFEE BREAK
Session 9
11:00 – 11:30
11:30 – 12:00
12:00 – 12:30
12:30 – 13:00 Group discussion
13:00 – 14:00 LUNCH buffet style – working lunch for poster viewing and networking.
Session 10 Poster Session
14:00 – 15:00 4 x 10 minute presentations to poster prize winners preceded by prize presentations
15:00 – 15:15 Closing Remarks